Showing posts with label Canberra. Show all posts
Showing posts with label Canberra. Show all posts

Monday, November 6, 2017

Annual General Meeting - 2017

 On Wednesday 1 November we had the Annual General Meeting of the Health Care Consumers Association.

We are pleased to announce that the following people are on the Executive Committee:
Sue Andrews (President)
Michelle Banfield (Vice President)
Indra Gajanayake (Treasurer)
And the general members of the committee are
Lou Bannister, Marion Reilly, Alan Thomas, Marcus Bogie, Shelley McInnis and Bernard Borg Caruana.
Chris and Yelin

Kate, busy taking the minutes of the meeting.

HCCA Staff - Yelin, Kate, Kathryn and Sandra


Kathryn and Fiona







President, Sue Andrews
Fiona Tito Wheatland presented on her thesis.

Indra reported on the financial position of the organisation.

After 16 years, Meg, HCCA Bookkeeper, retired!




Tuesday, July 4, 2017

COTA Affordable, Accessible, Appropriate Housing for Older Australians


HCCA Consumer Reps Ros Lawson, Sue Andrews and Marion Reilly attended the Council of the Ageing (COTA) Affordable, Accessible, Appropriate Housing Forum on Thursday 22 June 2017 at the National Press Club and have written a summary below of their thoughts and findings from the event.

An impressive range of expert speakers with both research and lived experience representing the community sector and government addressed the themes of the forum, many warning of a looming crisis as older Australians face mounting pressure from rising rental prices and carrying mortgages into retirement. They discussed new ways to address the changing housing needs of older Australians including affordability, housing security and housing options appropriate for older Australians, now and in the future.


With much criticism of one of Australia’s biggest retirement village operators as “bleeding residents until they die” in the news lately, the forum couldn’t have come at a more pertinent time. Surprisingly only a small percentage (5.7%) of seniors actually live in Australia’s 2,200 retirement villages , according to Ben Myers from the Property Council of Australia. He told the forum that the average age of entry to these villages was 75 with most staying about 7 years. The industry was now facing some serious problems. Most of the residential village housing stock is more than twenty years old and is often not what people want. These days village residents demand cinemas, gyms and coffee shops on site, pet friendly policies, communal gardens, and integration into the surrounding communities. One solution is to make retirement village mixed age communities. Myers quoted examples from Queensland where younger residents joined the villages where the average age was 80 and bought back the choirs and volunteering that had been in decline.

Providing residential villages in regional areas was often difficult because housing prices are currently not high enough for people to get sufficient equity to buy into the villages, and construction costs are often too high in rural areas.

Opening the forum, Ian Yates, CEO of COTA emphasised that the focus was on providing affordable, accessible and appropriate housing for seniors, and not residential aged care facilities. It costs the government as much as $34,000 a year to keep a person in residential aged care compared with $4,000 -7,000 to provide home support and care. Keeping people in their own homes and their own local community also promoted social connectedness with consequent good effects on their health and wellbeing.  

Overall, there is good news on the housing front for the majority of Australia’s 65 plus age group. But there is part of the population who are facing tough times.
Dr Judith Yates from the University of Sydney’s School of Economics said that 84% of the nation’s 65 plus are homeowners with 76% of that group owning their homes outright. The remaining 8% have mostly modest mortgages, and therefore most have very small housing costs. But private renters are in trouble, with about a quarter of them spending more than 50% of their income on rent causing much financial stress.
Renters also have much lower amounts of assets to call upon in times of economic hardship (the average is $1.2 million in super and property compared to under $200, 000 for renters). And this disparity will become even greater as the next generations face retirement.

The forum’s keynote speaker, John Daley CEO of the Grattan Institute (Australia’s leading non -partisan domestic research institute) says there are storm clouds on the horizon of housing accessibility for seniors.

A copy of John Daley’s presentation is on the Grattan Institute website: https://grattan.edu.au/wp-content/uploads/2017/06/COTA-seniors-housing-2017-June-16-9-original.pdf

Currently it’s not a social catastrophe as today’s seniors are net savers not spenders and will often pass away with more money in the bank than they retired with. But there are serious issues for those renters who are on pensions. They often have to skip meals, and are unable to pay utility and car registration costs so they can meet housing costs.

Rates of home ownership are falling for those in the 35-44, 44-54 age groups compared to those today who are 65 plus for whom the home ownership rate is the same as it was 35 years ago. In fifteen years’ time he predicts there will be significantly fewer people owning their own home, and there will be a real problem for renters as there has been little social housing built in the past 30 years. Currently the mix between private and social housing renters is about fifty fifty. Those people who have managed to get into social housing now will be staying on for many years so little will become available in the long term. According to Daley the only people able to access social housing now are the homeless and those suffering domestic violence.

And the answer to getting more housing is not for today’s seniors to downsize from their large suburban homes. When they downsize their choice is often limited to high end low density dwellings like townhouses and duplexes. Daley says this has arisen because those areas ripe for redevelopment- the medium density suburbs 10-15k from the city centre, are precisely those suburbs where there has been resistance to increasing the density of dwellings with apartments- the NIMBYs. As people prefer to downsize to a location that offers them shops, transport and community, most prefer to stay in the area they currently live in. Affordability is not on their list of desirability. So when large family home blocks are sold off, they are often replaced by high end town houses and duplexes. What is needed is to force developers to create affordable housing in larger developments and to ensure that the suburbs stay mixed as they are in Europe.

Daley warned of the shift from a system of stamp duty to land taxes which like rates would be paid over time. When land values go up because of favourable developments like trains and jobs then residents would pay more, and owners may have to seek economic buffers like reverse mortgages. 

He ended his talk by saying that what is needed is policy reforms like owner occupied housing being included in the asset test, and tax benefit and superannuation reforms. These are political debates that have currently stalled but he says when they next come to the fore they will run and run.

At the end of the discussion on affordability the former Senator Susan Ryan and now Age and Disability Discrimination Commissioner, raised the issue of the gender divide. She pointed out that there are more than 700, 000 women over 45 on low incomes who are single and do not own their own home. And John Daley agreed that the housing issue was most serious for women and that the overwhelming number of disadvantaged over 65s were women in single households and who are in the private rental market.

Other highlights of the Forum were the panel discussion about Affordable housing. Adrian Pisarski from National Shelter pointed out that there is no reliable current data about housing supply to inform policy decisions. More vulnerable people are more likely to be displaced and are then more at risk of homelessness which is on the rise including for older women. He mentioned Wintringham housing service in Melbourne as one of only a few who provide housing services for homeless people. Social housing is ‘broken’ and not meeting demand as the government is not investing enough. He thinks that the Community Housing sector has the capacity to increase supply but will always need investment from government.

Jeff Fielder from Housing for the Aged Action Group (HAAG) in Melbourne talked about their operation as an information and support service for older people. They provide early intervention for the growing number of older people at risk of homelessness. Again he noted that the private rental market does not work for older people because of short leases, high rentals and much lower rental housing in very poor condition. There need to be more options for people to access affordable housing equitably – public, community, independent living units, rental villages, aged care linked housing, Abbeyfield model, residential parks, shared living and a lot more advocacy. And he also noted that the aged care sector is well placed to assist with advocacy and appropriate placements by being better integrated with the housing and homelessness sector.

Lisa Langley from COTA NSW presented some outcomes of research with older NSW residents which tested attitudes and policy assumptions about housing which are made on behalf of older people.

The panel discussion about Accessible housing (regardless of age or ability) focused on issues of universal design, with contributions from Denita Wawn, CEO Master Builders Association, Sue Salthouse, Director of Rights and Inclusion Australia and David Brant from the Australian Network for Universal Housing Design. Contrary to the commercial market driven approach of the MBA, Sue Salthouse emphasised that self regulation doesn’t serve the market which shouldn’t only be driven by demand, an unreliable predictor of future longer term needs. Housing needs to be provided within the framework of human rights and our responsibilities under the relevant UN Conventions. She pointed out that all housing needs to have accessible and appropriate features. There is a complicated set of standards and regulations for builders, government and providers which makes accessible housing very challenging to regulate. 

David Brant picked up this issue saying that there needs to be more regulation and all new housing must meet a single basic accessible standard which ANUHB is lobbying for. This includes easy access from the outside (including lifts), internal ramps with no steps, wide doorways and halls, accessible toilet and bathroom and capacity for carer sleepover. This is slowly being implemented, especially in Victoria. This will ultimately be very cost effective by contributing to preventing older people being admitted (no falls, general safety) to aged care facilities.

The overlooked but very important issue was raised about older people living in rural and remote communities. They are unable to stay ‘home’ but can’t afford to move and are ineligible for assistance. This highlights the broader issue of lack of appropriate affordable services for remote communities.

For more information about the Forum go to the COTA Australia website where most of the presentations are available to download:

Sue Andrews
Ros Lawson
Marion Reilly





Tuesday, June 20, 2017

The challenge of communication – why it matters #hellomynameis


By our nature we are communicators, we trade information using a range of communication methods. When we are sick, feeling vulnerable, needing care, communication forms a central element in ensuring the quality and safety of the care we receive meets our needs. It can be hard for health professionals to get it right, when the volume of work is ever increasing, when the supporting structures are a bit shaky, when a multitude of specialists and professionals are involved, when you have never met the consumer before, when the information you need to give the consumer never seems to appear in a timely manner.
The consumer feels the same way, this is when a smile and a greeting can mean the world and can often unlock the answers required to ensure the quality and safety of the care received is just that little bit better.

Dr Kate Granger, a registrar in geriatric medicine, was diagnosed with terminal cancer in 2013 and passed away in 2016.

In one of her many stays in hospital she made the stark observation that many staff looking after her did not introduce themselves before delivering her care. It felt incredibly wrong that such a basic step in communication was missing.

Both her and her husband decided to start a campaign, primarily using social media initially, to encourage and remind healthcare staff about the importance of introductions in healthcare.

The twitter handle #hellomynameis and blog https://drkategranger.wordpress.com/2013/09/04/hellomynameis/
Within two years the campaign had won the backing of more than 400,000 doctors, nurses, therapists, receptionists and porters across more than 90 organisations in the UK and in 2014 a number of administrators and clinicians made Change Day pledges in Australia to adopt the #hellomynameis challenge. Canberra Hospital and Health Services adopted the challenge in 2015.

Kate’s belief that introductions are about making a human connection between one human being who is suffering and vulnerable, and another human being who wishes to help. They begin therapeutic relationships and can instantly build trust in difficult circumstances.
Health providers around the world have adopted many approaches based on the #hellomynameis campaign, it remains a simple approach. Many providers have short You Tube videos played from their websites and in waiting rooms, on screen savers internally, some have used posters and badges. 

Below are a number of YouTube videos providers have developed to demonstrate how they have implemented the campaign:
https://www.youtube.com/watch?v=CXDjim_ogx0 – Western Health, Australia
https://www.youtube.com/watch?v=xwCTeeOtl_Q – Southern Health & Social Care, Scotland
https://www.youtube.com/watch?v=D9EgBmiy9Jg – Royal Cornwall Hospital, England
https://www.youtube.com/watch?v=DoRMDlG1www – The Chesterfield Royal, England
http://www.belfasttrust.hscni.net/LaunchofHellomynameisCampaign.htm - Belfast Trust, N.Ireland

Kate viewed the #hellomynameis as the first rung on the ladder to providing truly person-centred, compassionate care. We agree.

Further resources for communicating with health professionals are found here:
http://www.scottishhealthcouncil.org/patient__public_participation/participation_toolkit/ask_me_3.aspx#.WTnxHv27q70
https://www.safetyandquality.gov.au/our-work/clinical-communications/patient-clinician-communication/
https://www.caresearch.com.au/caresearch/tabid/1107/Default.aspx
http://www.racgp.org.au/afp/2014/march/art-of-communication/


Sally Deacon
Manager, Consumer and Community Participation

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Tuesday, November 22, 2016

Age Friendly Shopping Centres


According to the World Health Organisation, ‘making cities more age-friendly is a necessary and logical response to promote wellbeing and contributions of older urban residents and keep cities thriving’. Where cities are age friendly they tend to be friendlier for all age groups as their direct needs are frequently shared with other groups, particularly people with young children and those with disabilities.

Canberra has been accepted as an age-friendly city. Living up to the WHO ideals should result in a friendlier and more relaxing environment. In shopping centres this is good for business and therefore profits.

These needs include:-
Having appropriate seating at regular intervals. Appropriate seating includes the correct height, and with arms, to enable older shoppers to sit down and get up easily.
Shopping centre seating needs to be user friendly, with seats facing each other to enable interaction between users.
Individual stores which involve customer queues, such as banks, should be encouraged to provide seats on their premises.
Many grandparents today act as baby sitters. Adequate seating near play areas is necessary to attract these customers to centres.
Car parks should be easily accessible to shopping centres, not separated by busy roads, as at the newly built Casey centre. This is a government responsibility but centre managers should have input into such planning. Where access to centres is limited or hazardous, customers are discouraged.
Underground car parks should be appropriately lit, to accommodate older people who often have less efficient eyesight.
In toilets, hooks behind doors, designed to hold handbags etc. should be at a suitable height for older people who tend to be shorter.
Shop keepers, particularly in supermarkets, should be encouraged to store goods purchased by older customers on shelves which are at a height accessible to this group.
In centres which have facilities for entertainment, the interests of the elderly could be taken into consideration.
Safety within centres should be paramount for all shoppers, including the elderly. Where safety is compromised, such as with ‘Wet floor’ signs, older people, for whom falling is a permanent hazard, are automatically discouraged from patronising the centre. The signs have no legal consequence and should be replaced by a non-slip flooring surface.
Moving staircases connecting floors should be appropriate for use by older shoppers. Those recently installed in the Gungahlin shopping centre extension are quite hazardous for older people, particularly for those with trolleys.

Older people form an increasing percent of the population and their needs in shopping centres should be considered, particularly as these are often paralleled by other groups. Attracting customers and providing an environment in which they are relaxed and comfortable is good for shopping centres and is therefore good for business and profits.

Audrey Guy
HCCA Member

Friday, November 11, 2016

Release of Report into the Treatment in Custody of Detainee at the AMC in Canberra

Independent Reviewer, Mr Philip Moss AM, provided the inquiry report to the Minister for Corrections Shane Rattenbury late Monday, 7 November 2016. I would like to acknowledge the important role that the Aboriginal community played in leading the call for scrutiny of the events that led to Mr Freeman's death.

The Government has released the report from the independent Inquiry into the Treatment in Custody of Detainee Steven Freeman. The inquiry considered the management of the custody and care of detainee Steven Freeman at the AMC and whether ACT Corrective Services systems operated effectively. 

It did not examine the circumstances and cause of death of Mr Freeman as that will be addressed by the police investigation and the Coroner. The inquiry examined and made recommendations to improve detainee management arrangements.

It is essential reading for anyone who is concerned about vulnerable people. It is not easy reading. It is distressing to see the points in which services failed this man. 


The report and submissions from key people and organisations, including Winnunga and ACT Health are available online http://www.justice.act.gov.au/news/view/1709/title/inquiry-into-the-treatment-in
  • Tensions between ACT Health and ACTCS in relation to the mental health services (12.2.45)
  • The five-month delay in Mr Freeman receiving a dental appointment, despite indicating that he was in pain and that he was unable to eat or sleep due to the pain (12.2.38)
  • At the AMC, all detainees are required to undergo drug testing on induction but Mr Freeman was not tested as he was assaulted soon after arriving and taken to Canberra Hospital. The Inquiry concluded that Mr Freeman probably experienced withdrawal from his multi-substance use while in TCH and on immediate return to the AMC. The Inquiry notes that he did so without support (that is detoxification, medical or therapeutic program) (12.4.4)
  • The Inquiry was told that Steven Freeman originally appeared in court wearing a hospital gown. (This is something Mr Freeman's family was interested in.) The Inquiry concluded that ACT 
  • Health and ACT Correction Services need to ensure detainees transferred from hospital to the courts are provided with clothes and do not appear only wearing hospital garments (10.1.13)
  • The Inquiry concluded that there was inadequate information sharing in relation to Mr Freeman between Justice Health and Canberra Hospital. The Inquiry also concluded that the agencies involved in the care of detainees need to find a way to share relevant detainee related information, yet take into account all legislative, professional and ethical obligations (8.3.8)
  • The Royal Commission into Aboriginal Deaths in Custody (RCIADIC) made recommendations relevant to this case. The Inquiry concludes further that ACTCS and ACT Health work with Winnunga Nimmityjah Aboriginal Health Service to fund and embed its holistic health model for Aboriginal and Torres Strait Islander clients (12.2.61)

Former ACT Chief Minister, Jon Stanhope,  now works are Winnunga. He wrote a submission in his personal capacity. It is compelling reading. He sees this as representing "a worrying failure of leadership".
It is an important matter to monitor.


Darlene Cox
Executive Director

Friday, August 26, 2016

Informed consent and challenges for people from CALD backgrounds

We held a meeting of our Health of Older People Consumer Reference Group on recently. The area of focus was the experiences of care of people from culturally and linguistically diverse (CALD) backgrounds. We have members of the multicultural community participate in discussion and Yelin and Sandra from the HCCA team ran an excellent role play that showed us how difficult it is to make informed decisions about your care when you do not understand the language.
Thank you to our colleagues from the Canberra Multicultural Community Forum and ACT Health for contributing to the session. Your input was very important to increasing our understanding of the issues faced by health consumers from CALD backgrounds.



Informed consent and challenges for people from CALD backgrounds

We held a meeting of our Health of Older People Consumer Reference Group on Wednesday . The area of focus was the experiences of care of people from culturally and linguistically diverse (CALD) backgrounds. We have members of the multicultural community participate in discussion and Yelin and Sandra from the HCCA team ran an excellent role play that showed us how difficult it is to make informed decisions about your care when you do not understand the language.
Thank you to our colleagues from the Canberra Multicultural Community Forum and ACT Health for contributing to the session. Your input was very important to increasing our understanding of the issues faced by health consumers from CALD backgrounds.



Tuesday, December 15, 2015

Building 15, Canberra Hospital


Our Executive Director, Darlene Cox, had a tour of the new Building 15 at #Canberra Hospital in early December. She took a  few photos to share.


Treatment Room in Building 15 at 
Consult Room in Building 15 at 

Consult Room in Building 15 at 

Long, wide corridors in Building 15. 
There is good lighting and alcoves to store a range of equipment. 

Gym for exercise physiology. You can also see that patients
are to be escorted by staff members to consult and treating rooms
in Building 15

Good to see bariatric plinths so that people of all sizes can 
safely access the care they need.

Building 15 - the view from the access point of 
the large multi story car park.

Wednesday, May 20, 2015

Cancer Voices Advocate in NSW Parliament


Kathy Smith was elected at the March 2015 election in New South Wales and is now the member for the Gosford Electorate.

Ms Smith recently gave her inaugural speech in the Legislative Assembly. 

We have provided an excerpt from this speech for those people interested in           the consumer experience of cancer services and the why we advocate for improved access. While Ms Smith is talking about the Central Coast many of the same issues apply to the Capital Region around Canberra. 



Earlier, in 1996, I had been diagnosed with cancer and during treatment I had become aware of an elderly lady who had to travel from Wyong to the Royal Prince Alfred Hospital for radiotherapy treatment each day for six weeks. She travelled by bus and train, and what torture that must have been for her. I was living in Hornsby at the time of my diagnosis and I was fortunate enough to be able to afford private radiotherapy treatment only 10 minutes away from home and my place of work. Silly or not, I was left with a feeling of guilt knowing that this much older lady was having to struggle to travel for treatment while I could be driven for mine without any effort on my part. 

On moving to the Central Coast, I was appalled to find that the only change to the local situation concerning radiotherapy treatment was the establishment of a private facility. However, that facility cost cancer patients thousands of dollars if they were to have treatment locally rather than travelling for public—that is, no cost to patient—treatment. As we were in a low socio-economic area, this was an impossible situation for some and many people were incurring debt to pay for treatment. That debt would mean many years of repayments and many years of depriving themselves in order to make them. Others were forgoing this lifesaving treatment altogether in the hope that the doctors were wrong. 

Being a person who always spoke up for the underdog and who took on the battles of those not able to fight for themselves, it was inevitable that I would do something to draw attention to this dreadful situation and a group of us began campaigning for the provision of public radiotherapy locally in 2006. It was an intense campaign, and it was only me and my very loyal and beautiful friend Kimberly Bates who continued through to the end. We had support from the then members for Wyong and Gosford, David Harris and Marie Andrews. In April 2010, former Prime Minister Kevin Rudd and Premier Kristina Keneally came to Gosford to announce joint State and Federal funding of more than $38 million for the construction of the Central Coast Cancer Centre, which of course included the public radiotherapy facilities for which we had battled so hard. On that day I had been discharged from hospital following the removal of a mouth cancer for less than 24 hours and Mr Rudd must have thought I had a very unusual way of speaking. 

The Prime Minister praised the actions of consumer advocates for bringing the problem to the Government's attention. He pointed out that even though politicians think they know what is needed by the community this knowledge does not always tally with what the public really wants. It had been made very clear to us by senior politicians at both State and Federal levels that without the public action the Central Coast would not have been in the running for public radiotherapy for many years. As I recall, we were number seven on the list, so public advocacy works. Today I am pleased to report that the number of people on the Central Coast receiving lifesaving radiotherapy has increased dramatically—I understand by about 22 per cent. This is not the number of people deciding to be treated locally rather than travelling for treatment; this is an increase in the number of people who previously would not have had any treatment. It is impossible to say how many of these people would have missed out or who would not have survived under the previous arrangements. However, statistics demonstrate what a tremendous investment by the Labor Government in cancer survival this public facility has been. So, fellow members, let us all listen to the public advocates in our area when they come to us with an issue. Many lives may be helped. 

The radiotherapy campaign on the Central Coast also introduced to me broader State and national issues that were in need of cancer consumer advocacy. Cancer directly affects one in three of us, but many more indirectly when our friends and family are impacted by this disease. While I had been campaigning on the Central Coast I had also been working as a consumer advocate with the Cancer Voices movement in Australia. Cancer Voices is the largest truly independent, non-funded cancer consumer organisation in Australia. I became the chair of Cancer Voices NSW as well as an executive committee member of Cancer Voices Australia. During my time with Cancer Voices, many battles were fought and won at both State and Federal levels. There is still much to be done in the cancer area, but I came to realise that the time had come to return to my own backyard and to work to the best of my abilities to continue to improve the lives of people on the Central Coast. There was never any question but that that would be done with the Labor Party.

Monday, April 13, 2015

Consumer Representatives Training



The Health Care Consumers’ Association will be running our next Consumer Representatives Training on Saturday 13 June and Saturday 20 June 2015 from 9am-4pm.

This free two-day course provides you with the opportunity to nominate as a Consumer Representative on a health service committee and make a valuable contribution to improve health services. You will learn more about the ACT Health System from a consumer perspective and how to use this knowledge to make effective systemic change.

The training includes:
Introduction to Consumer Perspectives         Navigating the Health System
Introduction to Consumer Participation         Effective Consumer Representation
Patient Safety Issues

To register: Tel: 6230 7800 or Email: sandraavila@hcca.org.au

Venue: HCCA Meeting Room, ACT Sports House, 100 Maitland Street, Hackett, ACT, 2602

Training courses are held several times a year. If you miss this one, please ask about future training dates.

Kate Gorman
Project Officer
Consumer Representatives Program


Friday, December 12, 2014

Canberra's New Minister for Health

Simon Corbell MLA is no stranger to the health portfolio having held the role in the mid-2000s but this time he will notice a difference.

It is going to be a very challenging time for the new Minister.

We are seeing increasing pressure on our public health system, with increased number of people accessing emergency departments and outpatient services.

There is uncertainty at the national level with the proposed introduction of policies that will undermine our universal health care system. This will make it more costly to see a GP and may well drive more people to public hospital emergency departments for care.

And we are part way through a large infrastructure program to design build facilities and services that will enable the ACT Government to meet the needs of the community for the next 30 years.

Mr Corbell has considerable experience in portfolios with strong vested interests and Health is no different. He will have many opportunities to draw on his skills and experience from the planning portfolio and as our Attorney General.

Health care is about people. It is not about buildings and equipment, although they play an important role. One of the strengths of our previous Minister, Katy Gallagher MLA, was that she did not forget about the people in the system and fostered good relationships. She recognised the needs of patients and staff who were at the front line of experiencing and delivering care. We are confident that Minister Corbell will take a similar approach.


We enjoyed a very good working relationship with Katy Gallagher as Minister for Health and look forward to working with Mr Corbell in his new role.

Darlene Cox
Executive Director
@darlenecox

Monday, May 12, 2014

Lung Life Support Group Visit to Physiotherapy Students at the University of Canberra



Ten volunteers with respiratory conditions visited the physiotherapy students at the University of Canberra. Pam, Maddie, Judy, Val and Jan attended the morning session while Pam G, Brian, Win and Helen R attended in the afternoon. Students met us in the car park and escorted us upstairs. One of them even parked Pam’s car so she wouldn’t have to walk so far!


In the students’ room we were greeted by a spread of homemade goodies – brownies, delicious muffins, homemade hot cross buns, banana bread and melting moments (just like Mum made!). We were waited on, hand and foot and then launched into the reason for our attendance. 


The educational side of the encounter meant:


  • numerous questions relating to our lung conditions - asked and answers recorded
  • stethoscopes came out and our lungs performed on cue, some more noisily than others. 
  • some of us had our lungs tested with a spirometer
  • blood pressure was taken before and after exercise
  • oxygen saturation levels were  measured and of course there was
  • time for just socialising.


Then it was out into the corridor for a six minute walk, our exercise for the day. Not all of us managed this but we tried because there was no pressure to perform.

Feedback from the students lets us know how pleased they are that we come. They see for themselves, how the chronic condition limits us and how the limitations are different in each person. The Physio students realise this knowledge is so valuable for their later work. They showed their appreciation by presenting the participants with a huge tin of chocolates. This in turn was most appreciated.

This is a very worthwhile activity. The students report that it’s very helpful for them to interact with patients, each with their individual problems and at different points in their condition. As well as the day being a most enjoyable and satisfying experience we’re able to help these professionals of the future.

Let’s plan to do our bit for the physios of the future.



Pam Harris, Chris Moyle and Helen Reynolds
Canberra Lung Life Support Group